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Parkinson's Associations

There are many national and regional Parkinson's Associations with resources available to you. At the Parkinson Association of Alabama, we pride ourselves on being your GO TO Resource for everything Parkinson's in Alabama. Each association has a special niche- when it comes to the resources they provide. We tap into these resources and try to highlight any that are relevant to you to spare you from needed to go to so many organizations. Below, we list the Association and explain how they can best be utilized as an arsenal of research and connection to learn more about Parkinson's. Often the PAA partners with these organizations to ensure we are bringing you the most current and relevant PD information. Each have opportunities to subscribe to newsletters and tap into additional resources.

Parkinson Association of Alabama (PAA)

We are a nonprofit organization serving the needs and concerns of patients with PD and their families / friends throughout Alabama. Staff engage in social and professional networking, fundraising, research support, developing and coordinating PD Support Groups, Outreach Services, PD webinars, newsletters, and this resource center to interact with the PD community in Alabama.

PO Box 590146

Birmingham, AL 35259

1.833.473.5465

www.parkinsonalabama.com

American Parkinson Disease Association (APDA)

Literature, education, support, research, events, access to local resources, Veterans and Blog.

Alabama Representative: Laura Lieb, CRNP, MPH

llieb@uabmc.edu

205.934.1000

135 Parkinson Ave.

Staten Island, NY 10305-1425

https://www.apdaparkinson.org/

Bachmann-Strauss Dystonia & Parkinson Foundation

The BAchmann0Strauss Dystonia & Parkinson Foundation (BSDPF) is a voluntary, non-profit organization that was established in 1995 to find better treatments and cures for the movement disorders dystonia and Parkinson's disease and to provide medical and patient information.

PO Box 38106

Albany, NY 12203

1.212.509.0995

https://www.dystonia-parkinson.org/

Cure Now: PD

CureNow: PD exists to be positive agents of change in PD research. The focus is on bringing full enrollment and participation to studies and clinical trials using a local network of Parkinson's ambassadors to make that happen.

102 Pitkin Street

East Hartford, CT 06108

1.860.918.9594

https://www.curenowpd.org/

Davis Phinney Foundation for Parkinson's

Literature, ambassadors, webinars, blog, Every Victory Counts Manual, The Parkinson's Podcast, research and events.

Alabama Care Ambassador: Carolyn Rhodes, rocketcity@rsbaffiliate.com

357 S. McCaslin Blvd, Suite 105

Louisville, CO 80027

1.866.358.0285

https://davisphinneyfoundation.org/

Diann Shaddox Foundation for Essential Tremor

Diann Shaddox Foundation for Essential Tremor is a Non-Profit public organization with the mission to educate, increase awareness about people afflicted with Essential Tremor and to find a cause and cure.

241 Boxelder Drive

Aiken, SC 29803

https://www.diannshaddoxfoundation.org/

International Congress of Parkinson's Disease and Movement Disorders

The International Parkinson and Movement Disorder Society (MDS) is a professional society of clinicians, scientists, and other healthcare professionals who are interested in Parkinson's disease, related neurodegenerative and neurodevelopmental disorders, hyperkinetic movement disorders and abnormalities in muscle tone and motor control. Learn latest news, research, and advances in movement disorders.

555 East Wells Street, suite 1100

Milwaukee, WI 53202

https://www.mdscongress.org/

Lewy Body Dementia Association, Inc.

Patient and caregiver services. Free publications. Local LBD support and virtual groups.

912 Killian Hill Road SW

Lilburn, GA 30047

1.800.539.9767

https://www.lbda.org/

LSVT Global

Global organization with explanation and listings of LSVT BIG and LOUD clinicians in the area.

https://www.lsvtglobal.com/

Melvin Weinstein Parkinson's Foundation (MWPF)

The Melvin Weinstein Parkinson's Foundation (MWPF) is available for individuals who meet certain eligibility requirements. For these individuals, the fund offers one time assistance for such costs ats home health care and the purchase of medical equipment, such as wheelchairs, walkers, and canes.

http://www.mwpf.org/

Michael J. Fox Foundation for Parkinson's Research

Literature, webinars, books, podcasts, events, Ask the MD, research, Young Onset PD

Grand Central Station

PO Box 4777

New York, NY 10163

1.800.708.7644

https://www.michaeljfox.org/

Muhammad Ali Parkinson Center

Muhammad Ali Parkinson Center is the face name for Barrow Neurological Institute providing patient care, centers and programs and information for providers and researchers.

2910 North Third Avenue

Phoenix, AZ 85013

1.855.752.8177

https://www.maprc.com/

Parkinson Alliance

This non-profit organization assists with patient centered research and resources.

PO Box 308

Kingston, NJ 08528

https://www.parkinsonalliance.org/ 

Parkinson Canada

This non-profit organization provides fact sheets and publications created in Canada related to Parkinson's.

https://www.parkinson.ca/ 

Parkinson's Disease School, Bastyr University

A unique wee packed full of strategies and tips designed to improve the lives of individuals with Parkinson's Disease. Facilitated by Dr. Lauri Mischley in collaboration with Bastyr University.

14500 Juanita Drive, NE

Kenmore, WA 98028

www.bastyrpdschool.org

Parkinson's Foundation

The Parkinson's Foundation provides an in-depth amount of resources for those living with Parkinson's and their care partners. It includes "How-To" videos, care partner stories, and practical/personal tips to enable better care and quality of life for those living with PD. It also has an extensive PD library, professional education, and promotes events and fundraising.

Alabama Aware in Care Ambassadors:

Clarissa Sharp, clarissasharp@icloud.com

Carolyn Rhodes,rocketcity@rsbaffiliate.com

1359 Broadway, Suite 1509

New York, NY 10018

1.800.473.4636

www.parkinson.org

Parkinson's Life

Launched in mid-2015, PL has been dedicated to publishing high-quality content for the international Parkinson's community. Voices, well-being, research, podcasts, etc.

1 Cobden Road 

Sevenoaks, Kent, TN

13 3UB United Kingdom

www.parkinsonslife.eu

Parkinson's Resource Organization

A social service organization in Palm Desert CA to insure no one with PD is isolated. ARticles, online groups and events, as well as a monthly newsletter are available.

74785 CA-111

Indian Wells, CA 92210

1.877.775.4111

www.parkinsonsresource.org

Parkinson Wellness Recovery PWR!

PWR! 4 Life is a comprehensive neuroplasticity-principled program that integrates the latest research on PD and Rehabilitation, exercise and wellness. Education, empowerment, coaches, and virtual assistance for motor and non-motor assistance is available.

1.520.591.5346

www.pwr4life.org

Parkinson Wellness Fund

Provides access to financial services and support needed to live an improved quality of life with PD today.

224 VA Beach Blvd, Suite 205

Virginia Beach, VA 23454

www.parkinsonwellnessfund.org

PD Avengers

This non-profit organization is a global alliance of people with Parkinson's, partners, and friends standing together demanding change in how the disease is seen and treated. They add urgency to research, wellness, and advocacy by uniting people and organizations to the cause of ending Parkinson's.

www.pdavengers.com

 

PMD Alliance

Independent, national nonprofit on a mission to empower people impacted by movement disorders with the tools and meaningful connections they need to thrive today. They provide resources to people living with the disease, care partners and adult children, support group leaders, and healthcare providers.

 

7739 E. Broadway Blvd, $352

Tucson AZ 85710

1.800.256.0966

https://www.pmdalliance.org/

 

Rock Steady Boxing

Resources for local Rock Steady Boxing Classes and Affiliate Programs throughout the nation. Blogs and newsletters about the program are also available. 

7440 N. Shadeland Avenue, Suite 202

Indianapolis, IN 43250

www.rocksteadyboxing.org

World Parkinson's Coalition, Inc.

The World Parkinson Coalition provides the only international forum on Parkinson's disease that invites all stakeholders to learn about the latest scientific discoveries, medical practice, and care initiatives that improve the lives of people living with Parkinson's disease. It is also the host of World Parkinson Congresses (conferences).

1359 Broadway

suite 1509

New York, NY 10018

1.646.388.7688

www.worldpdcoalition.org

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