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Private Organizations

There are additional private and national companies and organizations with resources that could be helpful for you to consider reviewing. These aren't specifically related to Parkinson's disease, but aging and disabilities in general to help map out long term care plans.

AARP - Caregiving Resource Center
Helpful articles and resources for care partners.
601 E Street, NW
Washington, DC 20049

Aging Life Center - Southeast Chapter
Experts in aging well. Serving Alabama, Georgia, Mississippi, North Carolina, South Carolina and Tennessee. An Aging Life Care Manager specializes in assisting older people and their families with long-term care arrangements. They help with the challenges of long-distance caregiving, put together a comprehensive plan for present or future needs, provide extra assistance for relocation, or monitor your relative during your vacation. There is a fee for this service.
3275 W. Ina Road, Suite 130
Tucson, AZ 

Brain Support Network
Brain Support Network (BSN) is a non-profit organization dedicated to the well-being of those challenged by neurodegenerative disorders. Focused on brain donations, education and support.

Caregiver Action Network
Speak with caregivers. Tips, Caregiver toolbox, videos, stories, agencies and organizations (like assistance with Rx) and respite resources. Training for caregiver, disease-specific, health related agencies and websites
1150 Connecticut Ave NW, Suite 501
Washington, DC 20036

Caregiver Stress
Caregiver resources, expert blogs, aging issues, safe driving planner, end-of-life planning and more.

Has a portal to find an in-home Caregiver close by. Features a Care Academy of videos and articles per health issue. The CareLInx Blog is a rich resource for everyone from caregivers and families, to hospitals and health plans. Stay informed about the latest industry trends.

Choose a Physical Therapist
Link to find a licensed physical therapist in your areal. Has information on symptoms and conditions.

Daily Caring
A care partner's beginner guide, managing family dynamics, caregiver wellness, etc. Daily Caring searches everywhere to find the most practical and useful tips, advice, personal stories, and resources related to caregiving and aging. Then, they boil it down to the most important points you'll want to know. (PD)
Searchable database to find up-to-date drugs and conditions. Has pictures to identify pills and an interaction checker. As well as other kinds of Parkinson's Disease (PD) drug information.

Emory Healthcare (Neurology) Parkinson's Disease Comprehensive Care Clinic
Emory is a Center of Excellence in Parkinson's Disease and offers a variety of unique services to its patients, including a Comprehensive Care Clinic for PD patients, large deep brain stimulation (DBS) team, and a number of research opportunities.
201 Dowman Drive
Atlanta, GA 30322

Family Caregiver Alliance (ACA)
FCA has provided services to family caregivers of adults with physical and cognitive impairments, such as Parkinson's, stroke, Alzheimer's and other types of dementia. Their services include assessments, care planning, direct care skills, wellness programs, respite services, and legal/financial consultation vouchers. Ongoing support is available with FCA, also now on a digital service platform. FCA is a longtime advocate for caregivers in the areas of policy, health and social system development, research, and public awareness, on the state, national and international levels.1.800.445.8106101 Montgomery Street, Suite 2150San Francisco, CA 94104
Trusted medical advice from the American Academy of Family Physicians. Interactive symptom checker, health-related news and articles.
11400 Tomahawk Creek Parkway
Leasood, KS 66211

Get Palliative Care is a website providing clear, comprehensive palliative care information for people living with a serious illness. Key features of the site include a Palliative Care Provider Director, a definition of palliative care, and detailed descriptions of what palliative care does and how to get it. It also provides an interactive quiz to assist you in deciding whether palliative care might be right for you or a loved one. The site is provided by the Center to Advance Palliative Care (CAPC).

Mayo Clinic (PD)
Focuses on PD and various health information, tests and procedures, drugs and supplements, symptoms, etc. Mayo Clinic Health Letter (Digital) is $9/99/yr. You can also request an appointment online.

Medicare Rights Center
Counseling, advocacy, financial, education, policy work, news, and media center.

Medline Plus (NIH Affiliate)
Excellent source of clinical information on PD, including resources, videos, journal articles, etc.
8600 Rockville Pike
Bethesda, MD 20894

Next Step in Care
Next Step in Care provides easy-to-use guides to help family caregivers and health care providers work closely together to plan and implement safe and smooth transitions for chronically or seriously ill patients. Has helpful guides and checklists as well.

The Conversation Project (Institution for Healthcare Improvement)
The Conversation Project is a public engagement initiaiive with a goal that is both simple and transformative: to help everyone talk about their wishes for care through the end-of-life, so those wishes can be understood and respected.
53 State Street 19th Floor
Boston, MA 02109 Network
We understand the struggles seniors face when trying to comprehend Medicare plans. That's why we created a guide that breaks down the different parts, benefits, and eligibility requirements of Medicare plans in Alabama. We also provide information on where seniors can get help in Alabama. You can access the guide here: 

Tremor Action Network
Service of the International Essential Tremor Foundation to provide hope to the essential tremor (ET) community worldwide, through awareness, education, support, and research.
PO Box 5103
Pleasanton, CA 94566

Website to provide information about PD and PD related drugs.

Well Spouse Association
Addresses needs and resources for caregivers. Has Support Groups, newsletters, events, webinars, etc.
63 West Main St., Suite H
Freehold, NJ 07728

What Matters Now
A website for patient support; allows patients to create their own free, private - What Matters Now site to: easily keep family and friends up-to-date, and share what's really happening, reflect deeply and celebrate life.

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