How do I create a Parkinson's free-zone?

Although Parkinson's is a part of your life, it's important to spend time together and with friends when Parkinson's isn't the most important person in the room. Take time to connect with you partner in ways you did pre-Parkinson's. Think about the everyday activities that bring you joy now and before your Parkinson's diagnosis, and make sure you're still taking time to do them together while talking about something other than Parkinson's.

​

Of course, some of these activities will change. Not everything will continue the way it did before Parkinson's was a part of our lives. Adapt, stay flexible, make new traditions, accept limitations, but remember that Parkinson's is a part of your life, but it's not your whole life. Focusing on the big picture will help you take care of yourself, your partner, and your relationships together.

​

It is often easier to designate a "Parkinson's-free zone" in your home rather than in social settings or large gatherings. With the best intentions, many friends and acquaintances may spend a bit of time asking how you're feeling and encouraging you to talk about your life with Parkinson's. Although these questions show that they care, you or your partner can step in and turn the conversation away from Parkinson's by asking friends about their own lives, their families, current events, and community news. By shifting the topic to something other than Parkinson's, you can keep it from being the center of attention. Try not to be defined as a human being by Parkinson's.

​

Disclaimer: The information contained in these Frequently Asked Questions have been sourced by reliable, research-based publications. It is to your discretion whether or not to incorporate the education and awareness as guidance into your wellness journey with Parkinson's. The Parkinson Association of Alabama cannot be held liable for the solutions you try, and you should always consult with medical experts before trying anything new or incorporating new matters into your overall wellness plan.

​

Source:

The Davis Phinney Foundation.  Chapter 13 - Social Connections, Relationships, and Community. Every Victory Counts. Page 225. "Manual." Sixth Edition, 2021.